Hemophilia

When you switch from a paediatric care to an adult care you will need to be more proactive about your care. Find information so that you can develop the self-management tools you need to take more responsibility over your hemophilia and make this transition easier for you.

Learn the basics of hemophilia including what it is, what causes it and how is it diagnosed. Also find information about the roles of different blood vessels in your body and what happens during a bleed.

Hemophilia treatment involves replacing the missing factor using injections. This way, you are supplying your blood with the factor it needs to form a blood clot and stop the bleed. Taking your factor as prescribed is a huge part of taking more responsibility in your hemophilia self-care. Learn how hemophilia therapy both treats and prevents bleeds and also find practical tips on infusing at home.

It is important to recognize bleeding as early as possible and treat it right away. Learn how to recognize bleeds and find information about the different types of bleeds and what happens when you have a bleed. Find information about accessing emergency care, how to care for a bleed and how to manage pain.

The two main complications of hemophilia include joint disease and inhibitors. Learn about both of these complications and how they are diagnosed and treated.

Find information about why it is important to have healthy lifestyle habits when you have hemophilia. This section also discusses relationships and gives you tips on how to talk to your significant other about your condition. Also find information about tattoos and piercings, alcohol, smoking and drugs and how they can interfere with your health.

Living with hemophilia means adjusting to an additional life change as you get older: learning to take care of your hemophilia on your own. This change is not immediate and can take several months or years. Find information to help you during this transition.

As a young person living with hemophilia, you will encounter many life changes, for example you may decide to attend post-secondary school, start a new job or travel. Learn how hemophilia plays a role in all of these natural life transitions and find information and tips to help you.